ALAS Self-Advocate Leadership Institute Team - Aeram Veras, Iana Bautista, Diego Becerra, Daniel A. Jimenez, Julisa Mendez, Xavier Muro, Joel Padron, Ximena Pedra Buena, and Leonel Santiago Sosa Traslaviña.
Through the Leadership Institute, they participate in leadership development, creativity, self-advocacy, and community inclusion activities that promote meaningful participation and representation.
Sydney Badeau is an unstoppable disability rights advocate and gifted digital storyteller from Wisconsin, whose passion for plain language and accessibility drives real change. After discovering her unique strengths as a neurodivergent individual, she is eager to help others discover their strengths. Sydney regularly speaks at conferences and encourages organizations to hire individuals with disabilities, based not on assumptions but demonstrated capabilities. She works for The Arc Wisconsin and People First Wisconsin.
Josh Bagemehl - For Josh, success isn't just about receiving help—it's about maintaining the sanctity of his home and leading his own progress. By using virtual tools, he has gained the ability to receive guidance and queuing without the constant physical presence of staff, fostering a new level of independence and privacy.
Ashley Baker is the Independent Living Quality Specialist within the Wisconsin Department of Health Services (DHS) in the Office for the Promotion of Independent Living (OPIL). She provides leadership, guidance and quality oversight of federal programs, and federal and state grant funds allocated to Wisconsinʼs eight Independent Living Centers (ILCs). Ashley also focuses on quality improvement initiatives related to home and community based independent living services, assistive technology, and service access throughout Wisconsin. Ashley holds a Bachelorʼs degree from Viterbo University in La Crosse, WI. and is a Certified Social Worker (CSW) and a Certified Assistive Technology Professional (ATP) through the Rehabilitation Engineering and Assistive Technology Society of North America (RESNA). ashley.baker@dhs.wisconsin.gov
Shanice Baquet is a holistic health practitioner, educator, and community advocate based in Milwaukee, Wisconsin. She is the founder of Mommy's Beautiful Sunrise Inc. and co-founder of Aja Healing and Masika Health Wellness Clinic, where she promotes wellness, healing, and support for families and underserved communities.
Priscilla Battle is a Self-Advocate Leader with People First Wisconsin and a Peer Mentor with Opportunity Development Center (ODC). She’s on the Plain Language team; an initiative she's very passionate about. She is a small business owner, a graduate of BPDD's Partners in Policymaking, and a Diehard Award winner. battlepriscilla01@gmail.com
Kaylee Bell is a Voting Outreach Specialist at Disability Rights Wisconsin (DRW). In her role she collaborates with self-advocates, community partners, and advocacy organizations to provide resources on voting and civic engagement to people with disabilities. With a background in nonpartisan civic engagement, get-out-the-vote initiatives, election administration, and public service, she is passionate about advancing civic literacy and helping citizens participate in democratic life.
Cindy Bentley is the Executive Director of People First Wisconsin, a statewide disability advocacy organization. Cindy serves on several boards including, The Governor’s Committee for People with Disabilities, Life Navigators Board, and the Milwaukee County Combined Community Services Board. In 2010, the Wisconsin Historical Society published a biography, which Cindy co-authored, about her remarkable life: Cindy Bentley: Spirit of a Champion. June 1, 2024 marked Cindy’s 40th anniversary of her release from the Southern Wisconsin Center and her rebirth into the community. Cindy shared her life story in a short film entitled Choose the Pond that was shown at The 2025 Wisconsin Film Festival as part of a collection entitled, Wisconsin’s Own Portraits. Cindy was awarded an Honorary Doctor of Humane Letters Degree from the University of Wisconsin-Milwaukee in May 2025 in recognition of over 25 years of advocacy. Cindy was awarded a lifetime achievement award for her advocacy, from the Wisconsin Chapter of the American Association of Intellectual and Developmental Disabilities (AAIDD) in March 2026.
Lynn Breedlove was the Executive Director of Disability Rights Wisconsin from 1980-2011. He served as Co-Chair of the Survival Coalition from 1999-2011. He is a Board Member InControl Wisconsin from 2009 to date. Lynnbreedlove.wi@gmail.com
Angela Brenna is a Program and Policy Analyst with the Wisconsin Department of Health Services (DHS). She supports multiple statewide disability councils, and works to advance policies that improve access for people with disabilities. She also brings lived experience as a wheelchair user, grounding her work in real-world accessibility needs. Angela.brenna@dhs.wisconsin.gov
Richard Brissette was born with a mild autism spectrum disorder in Danbury, Connecticut. Richard won 2 gold medals in his Special Olympics event in Bethel, Connecticut, in 1988 and graduated from Bethel High School the same year. Richard works for the Wisconsin Department of Revenue in Madison, Wisconsin, as a Data Verification Operator and has worked for over 33 years. Richard has attended the Autism Statewide Conference since 2007 and the Self-Determination Conference since 2017. In 2021, Richard purchased his electric tricycle at Crazy Lenny's Bicycle Shop and enjoys his bicycle riding pleasure. In April 2022, Richard became a Board Member for the Arc-Dane County in Madison, Wisconsin, and is now in his 4th year as a Board Member. In July 2022, Richard co-hosted the Return to Disability Pride Festival at Warner Park in Madison and is eager to co-host again. Richard loves golden retrievers. Richard continues to inspire people in the Madison Disability Community.
Jonathan Claflin is a Senior Operations Manager at PremierFMS and has 11 years of experience specifically in self-direction in Wisconsin and has been instrumental in shaping and advancing innovative care models at PremierFMS for participants and their families. Jonathan is committed to improving the level of independence participants and their families can achieve through self-directed programs. jclaflin@premier-fms.com
Marcey Clements is a public school teacher of ten years and advocate for families impacted by Autism. Marcey is a co-founder of CAMP and has been an integral part of its mission to change caregivers' lives through love, validation,
and empowerment. marcey@letsgotocamp.com
Katie Cummings has dedicated over twenty years as a theater artist, educator and advocate for inclusion and diversity in theater. A Wisconsin native, Katie graduated from Cardinal Stritch University with a BA in Theater and Business. Her resume includes First Stage, Bunny Gumbo, UW-Milwaukee, Chamber Theater and St. Joseph High School. Katie believes that theater has the power to develop empathy, create meaningful connections and engage community.
Deanna Daniels is a dedicated Regional Leader in Community Supported Living with a strong focus on assistive technology and self-directed care. As an experienced leader with GT Independence, Deanna brings a deep understanding of how innovative supports and enabling technology can enhance independence, dignity, and quality of life for individuals receiving services. In her regional role, Deanna supports Community Supported Living programs by guiding teams, developing sustainable service models, and advancing the use of assistive and enabling technologies to improve outcomes for the people served. Her work centers on making self-direction accessible and practical, ensuring individuals have the tools, flexibility, and choice needed to live life on their own terms. Deanna is known for her collaborative leadership style, hands-on approach with technology, and commitment to continuous improvement. She is passionate about strengthening community partnerships and advocating for person-centered solutions that empower individuals and families.
Sean Doran is a strong self-advocate who currently lives in his own apartment in Platteville, WI with support from Community Living Connections and NOSS. Sean’s positivity and his belief in what is possible are core to who he is as a person. Sean previously lived in an apartment with SHC services that was not successful (ask him why) and in a group home that felt “like an old folks home”. Moving into his own fully accessible apartment and using technology like NOSS services, Alexa, electric EZ stand lift, rotating air mattress and his cell phone combined with a responsive/flexible provider agency has been a great experience! Sean loves his family above all and will not hesitate to share how their belief in him shaped his future and perspective! Sean also enjoys sports, riding his accessible ATV, working out with his trainer, going to the casino and just getting out into his community!
Elsa Díaz-Bautista is the Executive Director of ALAS (Alianza Latina Aplicando Soluciones), a nonprofit dedicated to empowering people with diverse abilities through education, advocacy, and peer support. As a disability rights advocate and inclusive education activist, she is committed to creating communities where everyone has the opportunity to belong and thrive.
Ala'a Eddeen graduated from the very first Project Search program at the Kalahari Resort in the Wisconsin Dells. After completing Project Search, he was immediately hired by the Kalahari and currently welcomes guests as they check into the resort. Ala’a will share the amazing story of his employment journey, including how he became Kalahari’s highest customer reviewed employee. Ala’a is a dynamic communicator and will inspire attendees with his rich history and experiences.
Jean Eldredge is the Supervising Ombudsman for Disability Rights Wisconsin’s Family Care and IRIS Ombudsman program, supporting the other ombudsmen in their case work across the state.
Stacy Ellingen has a Bachelor of Arts degree in Journalism from UW-Whitewater. As a business owner, she works several different disability advocacy organizations doing a variety of things to advocate for people with disabilities. Living with a significant physical disability herself, she uses her personal experiences to advocate for others who may not be able to. She believes that people with different abilities should have access to the supports and services they need to be able to live life to the fullest! stacyellingen@gmail.com
Katie Erickson is a Family Care and IRIS Ombudsman with Disability Rights Wisconsin. She has 23 years of experience working with and advocating for adults with disabilities and older adults in settings that include the ADRC, Long Term Care programs, and skilled nursing settings.
Sally Flaschberger is a Project Manager at the Wisconsin Board for People with Developmental Disabilities (BPDD), where she leads the Wisconsin Disability Policy Program and Living Well initiatives. With more than 25 years of experience, she specializes in disability policy, long-term care, leadership development, and family advocacy. Sally is a co-lead of Partners in Policymaking and the parent of a young adult with a developmental disability. Sally.flaschberger@wisconsin.gov
Amanda Flater is a Team Leader with LSS|Connections and has been working in the IRIS Program for 6 years. Amanda works closely with a team of nearly 100 consultants and support staff. Amanda serves IRIS Consultants and Participants statewide and carries a small caseload as well. Prior to her IRIS work, Amanda worked as a corporate guardian and spent time working in and overseeing adult family homes. amanda.flater@lsswis.org
Ben Gapinski is a self-advocate graduate of BPDD’s Youth Leadership Forum and completed their counselor-in-training program. Ben is a founding member of the People First Wisconsin Youth Chapter and is active with Special Olympics. He enjoys running and spending time with friends.
Gerardo Barrios Garcia (pronounced: He-rah~Ardo), has lived and is testimony of living and caring for someone with a disability. Facing challenges and thriving despite all. Gerardo is a former medical interpreter for sign-language and Spanish, which he learned and got skilled to help his son. geras1403@gmail.com
Dana Glinski is a social and human services professional with over a decade of experience supporting individuals with disabilities. She specializes in member centered support, self-determination, and empowering people to direct their own lives. Dana currently serves as a Community Supports Specialist with Lakeland Care, Inc. Dana.Glinski@lakelandcareinc.com
Matt Glowacki was a Policy Intern in 2025 in the Department of Transportation, where he worked on projects related to accessibility for individuals with disabilities. Matt has over 30 years’ experience as a motivational speaker and advocate and has delivered his message to over 1 million people.
Kelly Gochenaur is the Managed Care Lead Ombudsman, who provides advocacy for individuals aged 60+ yrs. in the Family Care program. Kelly provides technical support to regional ombudsmen, leadership and outside groups, and engages in member focused system advocacy. Kelly was hired by the Board on Aging and Long-Term Care in 2017 and served as regional ombudsman for 6 counties prior to assuming her current duties in 2021. She has over 25 yrs. experience assisting individuals in exercising their right to self-determination within the LTC system.
Josh Gretebeck is a self-advocate from Stoughton Wisconsin. He is the Vice-President of the People First Wisconsin Executive Board. Josh is a long-time Special Olympics athlete who travelled in 2025 to Washington D.C. as a Special Olympics Wisconsin representative.
Brett Grycowski (Self-Advocate) is a Partners in Policymaking Class of 26 (BPDD) Graduate, a disability advocate & activist He is currently attending Bellevue University for a bachelor’s in business management & leadership. He has a degree in Health & Wellness (High Honors). Awarded “Campus Impact” award from MPTC. Formerly elected Health & Wellness Club President (MPTC). Living by his personal mission statement, “Show up, Stand up, Speak up!”runbretter@gmail.com
Vicky Gunderson has been working in the healthcare industry environment for over 37 years. Vicky believes and advocates for all people to enjoy the minutes of every day to the best of their ability. Vicky is the Executive Director for Acumen Fiscal Agent. Victoria.Gunderson@acumen2.net
Ashley Hammond is a 2024-25 Partners in Policy graduate, and a self-advocate for disability and human rights. She is active in statewide advocacy education and often attends government public forums. She has been an ACAP member since 2017.
Wendy Heyn works at Disability Rights Wisconsin (DRW). At DRW, she provides outreach and education to people with disabilities, their families and other stakeholders on voting rights. Wendy spent over a decade working as an elementary school teacher and it has prepared her well for teaching others about voting and for organizing outreach efforts. As the mother of a son who lives with disabilities, she is committed to helping voters understand their rights and feel empowered to vote. Wendy is a 2018 Partners in Policymaking graduate. Wendyh@drwi.org
Krystal Hileman is a proud self-advocate who values living a self-determined life. She is employed and takes pride in her work, seeing it as an important part of her independence and purpose. Krystal is also a proud mom of two adult children and enjoys spending time with her dog, Cookie. Through building strong relationships and practicing assertive communication, Krystal has grown in her confidence to advocate for herself and make choices about where and how she lives and works. She believes these skills can support all people in creating meaningful, connected, and self-directed lives. Krystalkristianna@gmail.com
Nichole Hysel COTA, ATP is an Assistive Technology Specialist with the Wisconsin Department of Health Services (DHS). She performs accessibility assessments focusing on assistive technology, home modifications, and vehicle modifications with a goal of increasing independence, safety and access for individuals enrolled in the IRIS program.
Shawn Inrcke works in disability services and is passionate about creating inclusive, person-centered supports for individuals with intellectual and developmental disabilities. She enjoys developing creative solutions, supporting strong teams, and helping people build meaningful connections within their communities. Shawn values collaboration, positivity, and making services both supportive and empowering.
Hannah Jakubek is a Youth Transition Coordinator at Options for Independent Living where she primarily works with young adults to help them develop skills for everyday life. She teaches classes focused on self-advocacy, kitchen skills, and various other activities of daily living. By facilitating different supportive and collaborative strategies, she strives to help consumers gain confidence and try new things. Hannah is especially passionate about helping youth build their confidence, problem solving strategies and independent living skills. She enjoys creating hands-on, supportive spaces where individuals can explore their goals and figure out what works best for them. With an accessibility for all mindset, Hannah strives to spread the message of the Independent Living Movement in her communities. hannahj@optionsil.org
Randi Johnson is a longtime advocate and Iris participant. Known for being able to connect people to the right resources, Randi Johnson has 38 years of experience in advocating and hiring workers. Randi Johnson is passionate about self direction and Long Term support. randijohnsonsb@gmail.com
Casey Kapalczynki is a dedicated long-term care advocate with over 15 years of experience supporting adults with disabilities and older adults across Wisconsin. She has worked with organizations including the ADRC of Brown County, the Board on Aging and Long-Term Care, and University of Wisconsin–Green Bay. Casey’s work is deeply personal. She had the honor of caring for and walking alongside three family members during their journeys with dementia, shaping her compassionate and practical approach to caregiving. Today, she serves as a Program Manager at University of Wisconsin–Green Bay in the Continuing Education and Workforce Training Department, where she supports and empowers caregivers throughout Wisconsin. She spends her free time traveling the world with her husband, reading, practicing yoga, and petting every animal she comes across. kapalczc@uwgb.edu
Brian Kenney is a retired Wisconsin Special Educator. He runs an extremely successful team building and leadership company called Team Extreme. He has facilitated team building and leadership workshops for over 25 years. Brian works closely with numerous diverse organizations such as youth groups, school districts, sports teams, not for profit groups, and parks and recreation programs. He is a recently published author. His book called "Figuring it Out" is focused on helping youth adjust to the difficult situations they will face on life's journey. Brian truly enjoys helping all people learn the value of team building and leadership. briankenney98@gmail.com
Alex Knapp is a self-advocate who regularly attends self-advocacy education opportunities. He has been an ACAP member since 2022.
Nick Koplydowski is a self-advocate for disability and human rights. He advocates for independence and continuing education for safe living. He has been an ACAP member since 2020.
Nekita Krisko (they/he) is a trans masculine disabled adult from Northeast Wisconsin. They graduated from UW-Whitewater with a writing degree in 2023 have been speaking and advocating for themselves and others since they were 15 at least. Now, at 27, he writes about his lived experience while working professionally in the mental health and disability advocacy field. They strive to empower, enrich, and enlighten the people they meet. Please feel free to contact him at kriskons16@proton.me
Becky Kuehl is passionate about creating person-centered strategies that enhance quality of life. She loves supporting individuals in building meaningful connections and relationships, grounded in the belief that growth happens in relationships. Becky brings a positive, uplifting vibe to her work, fostering trust, connection, and belonging while promoting self-determination and choice in everyday life. She holds a Master’s degree in clinical Mental Health Counseling and has experience working within Wisconsin’s long-term care system. Becky@positivelyhumanconsulting.com
Lindsay Kugler serves as the Peer Mentor Program Supervisor at Aptiv. With a focus on community building, innovation, and growth, Lindsey supports her mentors in building strong and supportive relationships. She’s been in the disability service field for 4+ years and is dedicated to assisting individuals with disabilities to live their most independent lives. lindsey.kugler@aptiv.org
Nathaniel Lentz has been presenting at numerous state and national conferences about how people with disabilities can succeed in education and employment since 2007. Nathaniel served on the Wisconsin Board for People with Developmental Disabilities for eight years. He served on the Think College Steering Committee to help students with disabilities succeed in college. Nathaniel advocated for people with disabilities at the Wisconsin Legislature and the United States Congress in Washington, D.C. He advocated before the Wisconsin State Joint Finance Committee for more financial support for people with disabilities. He served as a mentor for the Cutting-Edge program at Edgewood College. In 2020, he was a Self-Advocate for the Living Well Grant and People First Wisconsin. From 2021 to 2026, Nathaniel was an outreach advocate for People First Wisconsin. Nathaniel Lentz has been in numerous coalitions. Nathaniel is a full-time Program Manager for The Arc-Dane County as of March 2026. Nathaniel earned his bachelor’s degree from the University of Wisconsin-Whitewater in 2014. He is also a Contributing Editor of a book called Disability, Intersectionality, and Belonging in Special Education. This book focuses on the history of disability culture.
Lisa Lontz has worked at Lutheran Social Services for 25 years, working in a variety of roles with the common denominator being a passion for helping people live their best life on their terms. Most recently she Supervises Support Broker Services and Gaining Ground (a Crisis Stabilization and CCS Program). Lisa.lontz@lsswis.org
Madelynn Maclennan is a high school student with disabilities who is a phenomenal girl scout who is working toward her Gold Award.
Ashley Manuel is an Employment Specialist in the Madison area and ERI’s primary Pre-Driving Assessment provider. She holds a B.A. in Criminology & Law Studies and Psychology from Marquette University. Ashley brings experience in vocational case management and is passionate about helping individuals integrate into the community and achieve their goals. manuel@eri-wi.org
Sam Margelofsky is a Community Partnership Specialist with TMG who is passionate about amplifying lived experience and building partnerships that support choice, independence, and belonging. She believes community connection is key to living a full life and lives in Kenosha, where she enjoys time with her dog and a good book.
Hunter Markle is a young adult with autism, anxiety and other mental health struggles. His personal hobbies are DnD, writing and helping people with their life stories. He hopes to continue helping people with setting goals and getting through life.
Ashley Mathy is a disability advocate who was diagnosed with PDD-NOS (autism spectrum). She is a Wisconsin Policymaking Partner, Employment 1st Ambassador and member of several board of directors, including BPDD, TMG and APSE. Ashley currently serves as Chair of the Board for BPDD. Ashley has spoken around the state of Wisconsin advocating for individuals with disabilities. In addition, she has been interviewed on the TV, Radio and Newspaper on multiple occasions to provide her insights on various topics. Ashley works aggressively as an advocate for individuals with disabilities with a motto “Cross out the Dis and Embrace the Ability”. ashleymathy@gmail.com
Mary McKeown is the Managed Care Ombudsman for Dane, Jefferson, Rock, and Walworth counties for the Board on Aging and Long Term. Mary provides advocacy to members of Family Care and Partnership programs. Mary started with the Board on Aging and Long Term Care in 2016, initially working as a Regional Ombudsman. Mary’s previous work experience includes advocacy for survivors of domestic violence as well as students in alternative education programs. Mary holds a master’s degree in community counseling.
Hannah Medo lives 4 nights a week with her parents and 3 nights a week with her roommate, Elise. She likes having a roommate because they hang out with other friends and make dinner. She does lots of special sports - basketball, track, bocce, and bowling. She likes to see her friends there. Hannah also like baking, walking, playing games, and movies.
Stephenie Mlodzik is the Sexual Violence Prevention Project Manager at People First Wisconsin and a Relationship & Sexuality Educator at Covey. She creates prevention resources and curriculum, teaches sexuality education and rights classes for people with disabilities, and works with schools, agencies, researchers, and community partners across Wisconsin. Stephenie brings both professional expertise in disability rights and lived experience as a sexual violence survivor with disabilities to her work. She is also a graduate of Partners in Policymaking and serves in leadership roles that support disability rights, health equity, and violence prevention (WI-BPDD, WCASA, LGBTQIA2S+ Health Equity Coalition, Our Wave, etc.). Stephenie.pfw@outlook.com
Anna Morehouse grew up in Baraboo and now lives in Wisconsin Rapids. She works at ODC as the Service Development Manager and co-leads the Peer Mentoring program. Anna cares deeply about helping people grow, build connections, and succeed in their communities. amorehouse@odcinc.com
David Morstad is a veteran of 45 years in the developmental disability field and was the Executive Director and Senior Fellow of the Bethesda Institute. He is currently a member and past chair of the Governorʼs Committee for People with Disabilities in Wisconsin and serves as Chair of the Board for CCLS. David.Morstad@gmail.com
Catherine Moyett the founder of Lifeline Services Group and a financial coach who focuses on practical strategies that help individuals build confidence managing everyday life challenges. As a self-advocate living with a chronic medical condition, Catherine understands firsthand the importance of developing systems that support independence and stability. In addition to her professional work, Catherine has extensive lived experience supporting family members navigating significant mental health challenges. These experiences have shaped her approach to teaching practical skills that help people build confidence, develop healthy habits, and make informed decisions. Catherine’s work focuses on helping individuals, families, and communities develop real-life tools that support safety, financial awareness, and greater independence. Lifelineservicesgroupllc@gmail.com
Eric Moyett works alongside Catherine Moyett in supporting practical strategies that help individuals and families build independence and confidence in everyday life. Through both personal and professional experience, Eric understands the importance of supportive partnerships when developing financial responsibility and life skills. His perspective highlights how encouragement, communication, and practical tools can help individuals build confidence managing real-world challenges.
Aaliyah Muhammad is the Lead Ombudsman-Outreach Family Care and IRIS Ombudsman Program at Disability Rights Wisconsin. She’s worked in the public sector for almost 20 years, helping people get the answers to benefit and services requests. For the past six years she has been part of Disability Rights Wisconsin’s Family Care and IRIS Ombudsman program, supporting clients with things like negotiations, communicating with agencies, and appealing decisions about services, medical equipment and other care needs. Aaliyah cares deeply about the rights of people with disabilities and enjoy using what she’s learned over the years to help them speak up for the care they deserve.
Rebecca Mulhern is the Ombudsman Services Supervisor, Board on Aging and Long-Term Care. Becky is a Certified Therapeutic Recreation Specialist with over 27 years of dedicated experience working in the field of long-term care. Becky has served in leadership positions in long-term care since 1998 including St. Coletta as the Therapeutic Recreation Director, the City of Minneapolis as an Adaption and Inclusion Coordinator, various county positions including as an ADRC Director overseeing Adult Protective Services, transportation, aging, nutrition and caregiving units. Becky previously was a Program Manager for a Managed Care Organization, and a Communication & Development Specialist at the Alzheimer’s and Dementia Alliance of Wisconsin. Becky continues to be an advocate for changing the culture of aging and empowering older adults through her work as the Ombudsman Services Supervisor at the State of Wisconsin Board on Aging and Long-Term Care.
Jenny Neugart is the Grassroots Community Organizer for the Board for People with Developmental Disabilities. She has over 25 years’ experience working with youth and adults with disabilities on employment, leadership, and self-advocacy. Jennifer.neugart@wisconsin.gov.
Kate Norby is the Director of Development, ODC, Inc. Kate is committed to advancing person-centered practice and systems of support that honor full citizenship and inclusion for all. A firm believer in the principles of self-determination, Kate encourages individuals and organizations to actively build welcoming and diverse communities. Kate has worked in human services, business and education for more than three decades and holds undergraduate degrees in education and sociology, and a master’s in human and community development.
Autumn Nordall is a passionate advocate and staff member at Options for Independent Living. As a person with a spinal cord injury since the age of 16, she brings both personal experience and professional knowledge to what she does. Navigating school, healthcare, community life, and parenting has shaped her approach to advocacy and problem-solving. These experiences guide how she thinks about access, inclusion, and participation in everyday life. She enjoys helping people figure out what works for them, navigate barriers, and advocate for what they need so they can take part in the things that matter most to them.
Ashley Parkhurts, BSW, is the self-employment specialist for Easter Seals Wisconsin. This position involves helping individuals with disabilities determine if self-employment best fits them. She creates feasibility studies and business plans. This also includes helping clients find what assistive technology will make pursuing their business idea feasible. Her experience includes going through many assistive technology assessments with various professionals to determine what would be most beneficial to her at the start of her career. She has also assisted many clients going through these assessments over the past 10 years to find what was beneficial for them. aparkhurst@eastersealswisconsin.com
Chris Patterson grew up with a sister that has a developmental disability and brings a wealth of experience to our Night Owl Support Systems team. Chris has volunteered his time to serve on the Access to Community, Avenues to Community, Oregon Youth Basketball, and Wisconsin Badger Camp’s Board of Directors. He resides in Stoughton, WI with his wife and two sons. He enjoys playing basketball, music, golf, and spending time with his family. chris@nossllc.com
David Pinno is a self-advocate with a strong work ethic and ambition for systems change. He spends a great deal of time advocating for disability rights. Most recently he was active in the MAPP reform, Employment First and Supported Decision Making Bills that passed. David is a Partners in Policymaking graduate. pinnodd2001@gmail.com
Laura Plummer, MA, CRC, ATP, is the Assistive Technology Program Coordinator for the Wisconsin Department of Health Services. In this position she oversees Wistech, Wisconsin's Assistive Technology Act program and collaborates with program partners to ensure comprehensive AT programs are available for individuals with disabilities.
Aracely Portillo has had several roles at the Waisman Center since 2022. In addition, she is the mother of a Young adult with special needs. Bilingual Family Support Specialist with CRCS South (Children Resource Center South) and the UCEDD program. LEND graduated in Family Discipline. Previously worked as a Bilingual Nutrition Educator at UW Extension for sixteen years. has a BS in Health and Wellness Management from UW-Superior, and she is Co-Founder of a Community Latino Group, Padres e Hijos en Acción, which serves families with children with special needs.. Aracely is a community leader in Madison, WI's Latino community.
Hector Portillo is the Executive Director of Padres e Hijos en Acción, a grassroots organization that empowers Latino families of children with disabilities through advocacy, resources, and community support. He also hosts the organization's monthly radio show on La Movida 1480 AM, connecting families with valuable information and resources.
Jenny Price was a Policy Fellow for 2024-2025 in the Department of Health Services, where she worked on projects in policy and operations in the Division of Medicaid Services for children and adult long-term care programs. She is a Partners in Policymaking graduate and a parent advocate for her teenage son, who is autistic. glow0880@gmail.com
Stefanie Primm is the Executive Director at LOV Inc., Living Our Visions Inclusively, which unites people with developmental disabilities to engage and build their best lives.
Melissa Pulju is an ombudsman for the Family Care and IRIS Program at Disability Rights Wisconsin. She has worked in her position for eight years advocating for people on Long-Term Care ages 18-59. The Ombudsman program services people all over the state of Wisconsin. Melissa’s passion is helping people advocate for what they need. In her role at DRW, she is able to help people receive the services they need while helping them gain the knowledge to advocate for themselves.
Nathan Pulju is an IRIS participant that works in the community. He is supported by his dog Nova. Nathan enjoys watching movies, kayaking with his family and his dog. Nathan loves animals, he has chinchillas, bearded dragons, bunnies, chickens, ducks, and llamas. In his free time he enjoys playing video / computer games like Minecraft, Pokémon and loves building Legos sets. Nathan loves using technology: computers, iPad, phone he uses these items to navigate things that are difficult for him.
Jill Renken, MPH, CHES, Executive Director for the Wisconsin Institute for Healthy Aging (WIHA), collaboratively supports and guides statewide partners in improving the health and well-being of adults. Over the past 18 years, Jill has worked within Wisconsin’s Aging Network to oversee statewide implementation of evidence-based healthy aging programs and public health initiatives, such as the Wisconsin Coalition for Social Connection. Jill.renken@wihealthyaging.org
Brittany Rewolinski has dedicated herself to the Human Services field since 2009, driven by a foundational belief that every individual deserves to live the life they envision for themselves. Brittany’s professional journey is defined by a unique intersection of deep-rooted empathy and a forward-thinking passion for tech-enabling tools. She believes that technology, when applied with intention and heart, serves as a powerful bridge to independence. Throughout her years in the field, she has seen first hand how the right digital solutions can dismantle barriers, streamline support, and empower people to navigate their worlds with greater confidence and autonomy. Brittanyrewolinski@vistaCare.org
Colleen Rinken grew up with 11 older siblings and became a human observer and helper from an early age: watching, listening, and learning. Those instincts led her to earn a master’s in Mental Health, Substance Use, and Child/Adolescent Services and spend over 45 years as a therapist, educator, and leader. She has worked with individuals, families, and groups, and shared thousands of hours of training in clinics, colleges, and statewide programs. After retiring, Colleen's own recovery journey inspired her to start a consulting and training business, because everyone deserves to know they are “Positively Human.” Colleen@positivelyhumanconsulting.com
Arely Romero is the Bilingual Family Navigator for Padres e Hijos en Acción, a Community Latino Group, Padres e Hijos en Acción, which serves families with children with special needs. She also works in a Dane County Agency as a Family Support Peer, and is the Sister of a young man with special needs.
Jacob Roncone is 26 years old and lives at home with his parents. He has two brothers, two nephews and two cats. Jacob loves to help people by volunteering at Zachariah’s Acres and very soon at a senior center. He is currently waiting for a job opportunity at a local coffee shop. Jacob enjoys hanging out with friends, going to the movies, drum lessons, and playing video games.
Samantha Sackmann is a Certified Peer Specialist at a recovery center for adults with mental health and substance use challenges. Samantha is CCS certified and provides peer support for individuals in the community. In addition, Samantha is a NAMI Peer Support Group Facilitator. She has also run peer support groups at the inpatient mental health unit at Aspirus hospital. Sharing the power of peer support is a passion that drives her. Having multiple mental health diagnosis, Samantha has decades of lived experience. Now far along on the road of recovery, Samantha is a true mental health warrior in both her personal and professional lives. ssackmann@milc-inc.org
Delores Sallis is the mother of five children, Her youngest son, Albert, had multiple disabilities. Delores is the founder of Parent University, which serves as a resource center to help families in the Milwaukee area navigate systems to help their loved ones with disabilities. She has great passion for people with disabilities and their families. She helps families ask for what they need but don’t know how to ask. Delores.sallis@gmail.com
Helen Sampson, LCSW, has been working with the Bureau of Aging and Disability Resources within the Wisconsin Department of Health Services and Division of Public Health since February 2024 initially supporting Social Connection and Livable Communities grants throughout the state and now as a Public Policy Strategist working on variety of projects including reframing aging and disability and age-friendly initiatives. After completing her Master of Science in Social Work degree at UW-Madison, Helen continued her career development in Massachusetts and California. She provided direct service and leadership in hospice and community-based organizations focused on serving older adults and persons with disabilities. She comes to her current position following 14 years of leadership in Aging and Disability Resource Center (ADRC) work after returning to her home state of WI. She is passionate about continual learning in service of creating positive, meaningful impact for systems and people. helen.sampson@dhs.wisconsin.gov
Tiffany Schanno is a Wisconsin Disability Policy Fellow working in both adult and children’s long-term care within the Division of Medicaid Services. She is a disability advocate, co-founder of the Learn in My Shoes Campaign, and a strong voice for families navigating disability, education, and Medicaid systems. tiffy0274@gmail.com
Kristi Scheunemann is an active disability advocate and frequent presenter on issues affecting people with disabilities in Wisconsin. For the past two years, she has served on the Board of Directors for Creative Community Living Services (CCLS), an organization supporting 300 people throughout Wisconsin. kristischeunemann@gmail.com
Sara Schueller is currently the Assistant Director of Employment with Opportunity Development Centers, Inc. (ODC). Sara has over 35 years of experience in the field of vocational rehabilitation and has spent the last nineteen years in various roles at ODC working with both youth and adults. In 2018 Sara went through the Elevatus Training
Curriculum on Sexuality Education and has been passionate about this topic ever since. She has traveled throughout the state of Wisconsin educating students, advocates, parents, and funders about the importance of this topic and the rights for all people to be in a healthy, sexual relationship.
Christine Schulz is a Community Partnership Specialist with TMG who works and lives in Southeast Wisconsin. Her work focuses on building strong, collaborative relationships with individuals and families and supporting people to live healthy, full lives in their communities. Christine is a passionate advocate for choice, control, and independence. She lives in the Milwaukee area with her husband, dog, and cat.
Carl Schulze is a 44-year-old disabled man from Neenah, Wisconsin. His mission is to raise urgent awareness about the lack of home healthcare access for Medicaid recipients and to advocate for higher wages for home health aides, the essential workers who support people with disabilities in living independently. As a quadriplegic, Carl relies on care workers everyday.
Ellie Sherven is a marketing and event planner in Madison, WI. She is the mom to neurodiverse children. Ellie is the co-founder of Caregivers of Autism Maximizing Potential (CAMP), a weekend retreat in Wisconsin for caregivers of children on the autism spectrum. Over the last three years, CAMP has provided 300 caregivers with a safe space for connection, rest, and learning. ellie@letsgotocamp.com
Kayla Smith is the IRIS Lead Ombudsman at the Board on Aging and Long Term Care. Kayla has a Bachelor of Arts degree in Social Work from Marian University with a specialty in psychology. Kayla spent the first years of her career as an IRIS Consultant with an IRIS Consultant Agency. She has been with the State of Wisconsin Board on Aging and Long Term Care for the past five years, holding the IRIS Ombudsman Specialist position and currently the IRIS Lead Ombudsman.
Chad Sobieck is a lifelong disability advocate and a strong leader in Wisconsin’s self‑advocacy community. He serves as President of the People First Wisconsin Madison Chapter and works on staff for the Wisconsin Youth Leadership Forum, where he supports young leaders in finding their voice. Chad also completed an internship with The Arc Wisconsin, gaining experience in advocacy, outreach, and community education. Throughout his life, Chad has faced challenges but never stopped speaking up for himself and others. His story shows the power of determination, community, and believing in your own strengths.
Scott Struckmeyer is an Ombudsman with Disability Rights Wisconsin (DRW), where he has served for three years. He brings 28 years of experience working with frail elders and individuals with mental health needs, intellectual and developmental disabilities, and physical disabilities. In his role, Scott is committed to supporting individuals in maintaining access to services that promote their health, safety, independence, and overall well-being.
Samantha Szynskie is the Founder and Director of One Good Friend, a nonprofit organization focused on building friendship, inclusion, and connection for people with disabilities and others experiencing loneliness and isolation. Through One Good Friend, she collaboratively creates spaces where authentic relationships grow and people of all abilities experience joy and belonging. In addition to leading One Good Friend, Samantha works in disability services teaching Healthy Relationships courses for Opportunity Development Centers (ODC, Inc) and serves as Chair of the Portage County Disability Coalition. Trained as an educator at the University of Wisconsin–Stevens Point and earning her Master’s in Administrative Leadership from the University of Wisconsin–Milwaukee, she has dedicated her career to advocacy, education, and building more inclusive communities.
Emery Rankin Utevsky is an Autistic social worker who currently works as a case manager in the CLTS program. It is important to Emery that disabled and neurodivergent people are empowered with information to navigate the complex systems of social services. Emery lives with their roommate, two dogs, and a crested gecko. In their free time, they enjoy building Lego, watching TV, and reading, especially memoirs of cult survivors. erutevsky@gmail.com
Kristin Voss is a retired high school social studies teacher who will always love to study, work with, and support PEOPLE. In retirement, she has founded The Center for Caregiver Serenity, to support, educate, celebrate, and advocate for family caregivers. Kristin was a long distance caregiver to both of her parents who had chronic illnesses, a hired caregiver to a friend who struggles with bipolar disorder, and a deeply committed caregiver to her 25 year old daughter with autism, epilepsy, and an intellectual disability. With her lived experience and professional skills, she was invited to join the Wisconsin Family and Caregiver Support Alliance. In her free time she loves to read, travel, talk with people about their stories, walk in nature, do yoga, and drink Starbucks and wine!
Jolene Wanek is ERI’s Client Services Director, overseeing a statewide team to ensure strong outcomes for individuals seeking employment. She also provides direct Employment Services and Work Incentive Benefits Counseling. Jolene holds a Psychology degree from UW–Eau Claire and is a Certified Employment Support Professional (CESP™). wanek@eri-wi.org
Mackenzie Wann is currently an intern with the Bureau of Aging and Disability Resources at DHS. She is a disability advocate, accessibility consultant, and peer mentor. She is the President of the Board of Directors at Disability Rights Wisconsin and serves on multiple local, state, and national advisory councils focused on disability rights, independent living, and community inclusion. She comes to this work with lived experience as a wheelchair user and quadriplegia following a spinal cord injury. She also has experience navigating Wisconsin’s long-term care and home and community-based services. Mackenzie’s work centers on improving accessibility, strengthening long-term care systems, and ensuring that people with disabilities and older adults have meaningful voice in policy decisions.
Tina Wiley is a peer mentor from Milwaukee who overcame early life challenges, including health issues and time in foster care. She became a nurse and foster parent, always focused on helping others. As a mentor and self-advocacy leader, Tina supports people in becoming confident, capable, and empowered. twiley2369@gmail.com
Lang Xiong is a Project Coordinator at the Hmong American Friendship Association in Milwaukee, where he helps strengthen and support the Hmong community. An active community leader and interpreter, he has served in leadership roles with local nonprofits and was named Hmong Man of the Year in 2011.